Web Resources for Caregivers
Dealing With Alzheimer's Disease or Dementia
Ageless
Design
a consulting, education and information company that studies seniors
and the age-related conditions they experience in the home environment
to then recommend creative, cost-effective solutions. They offer lists
of products and tell you where to get them. There is a heavy emphasis
on Alzheimer's Disease and how to adjust the home to provide a safe environment
as well as a wealth of other information on Alzheimer's.
(3/2010)
Alzheimer Store
provides unique products and information for those caring for someone with Alzheimer's disease. Every product in the store has been carefully selected to make living with Alzheimer's disease as easy as possible. Products fall into categories such as: safety, wandering, activities of daily living, falls, incontinence, caregiving, forgetfulness, books, and activities and entertainment. The Alzheimer's Store is owned by Ageless Design.
(3/2010)
Alzheimer's
Association
a source of information, support, and assistance on issues related to
Alzheimer's disease.
(3/2010)
Alzheimer's
Disease Centers
researchers at the 34 National Institute on Aging funded centers, housed
at major medical institutions across the nation, work to "translate
research advances into improved care and diagnosis for Alzheimer's patients" while,
at the same time, focusing on the program's long-term goal - finding
a way to cure and possibly prevent Alzheimer's disease. Each center has
its own unique area(s) of emphasis. In North Carolina, Duke University
hosts a site at the Joseph and Kathleen Bryan Alzheimer's Disease Research
Center.
(3/2010)
Joseph and Kathleen Bryan
Alzheimer's Disease Research Center
one of the 32 national Alzheimer's Research Centers funded by the National Institute on Aging. Their goals are to continue to improve the diagnosis, management, and treatment of Alzheimer's disease patients and to translate genetic discoveries into practical treatments and disease prevention. They offer care for patients and their families, provide community outreach programs, and various support services. This center is housed within Duke University's Medical Center. Call toll-free 1-866-444-2372 to talk to a staff member.
(3/2010)
Alzheimer's
Disease Education and Referral Center (ADEAR)
the National Institute on Aging's (part of the National Institute of
Health) information site on Alzheimer's Disease, its impact, and research.
(3/2010)
American Health Assistance Foundation
the American Health Assistance Foundation (AHAF) is a
non-profit organization that funds research seeking cures for Alzheimer’s
disease, age-related macular degeneration and glaucoma, and provides
the public with information about risk factors, preventative lifestyles,
available treatments and coping strategies. They offer a toll-free number
for assistance 1-800-437-2423.
(3/2010)
Mayo
Clinic's Alzheimer's Center
a direct link to the " Alzheimer's Center" on the website.
(3/2010)
Predicting
Time to Nursing Home Care and Death
a study, now in its eighth year, designed to investigate the natural
history of Alzheimer's disease in order to develop predictor models for
use in the management of the disease. Columbia University College of
Physicians and Surgeons, Massachusetts General Hospital, Harvard Medical
School in Boston, and Johns Hopkins University School of Medicine are
involved in the study. A "Predictor Calculator" has been developed to
try and determine a timeline of decline for caregivers to use in planning.
(3/2010)
The Forgetting:
a Portrait of Alzheimer's
a website designed to compliment a PBS documentary on Alzheimer's called
"The Forgetting: a Portrait of Alzheimer's".
(3/2010)
The Living Center
a virtual living room where you can choose different online activities. It was created specifically to help family and friends spend enjoyable time with people who have Alzheimer’s disease. Designed in conjunction with leading Alzheimer’s experts and computer scientists, it is meant to engage people in all different stages of Alzheimer’s.
(3/2010)
Note: Many of the Caregiver websites have a section on Alzheimer's.
